Tommy Tainant
Diamond Member
‘Life-changing treatment’ – NHS England is to pay for a genetic treatment that will save children with a rare inherited disorder from going blind. The one-off injection of voretigene neparvovec, also known as Luxturna, is for babies born with inherited retinal dystrophies. It normally costs £613,410 per patient but the NHS has done a deal with Novartis, the UK supplier, and the numbers needing treatment are low. The company estimates that 86 people in England could benefit now, and about three to five babies with the genetic mutation are born every year. “Loss of vision can have devastating effects, particularly for children and young people, but this truly life-changing treatment restores the sight of people with this rare and distressing condition,” said the NHS chief executive, Simon Stevens.
What an amazing day for this small group of people.
I expect that every one is covered for this drug through their insurance in the states ?
What an amazing day for this small group of people.
I expect that every one is covered for this drug through their insurance in the states ?